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Communication and information about Spina bifida

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Presentasjon om: "Communication and information about Spina bifida"— Utskrift av presentasjonen:

1 Communication and information about Spina bifida
By Thale Hartmann

2 Target groups People living with Spina Bifida
Parents, siblings and other family Health professionals, both local caretakers and specialists Teachers an people working in schools Employees in social services Society in general

3 Websites www.sunnaas.no/trs Sjelden.no Helsenorge.no
About Spina Bifida: References: More about Spina Bifida: Sjelden.no Helsenorge.no Norwegian National Advisory Unit on Rare Disorders

4 Social media National help line Facebook Twitter
Operated by Norwegian National Advisory Unit on Rare Disorders:

5 E-learning and movies E-learning: Webinar: Movies:

6 Print What is Spina Bifida Newborn with Spina Bifda
Follow up guide for general practitioners: Sexuality and Spina Bifida, short and long version Drivers License Work life Neurological follow up Urinary tract : follow up Pressure sores: follow up


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